Noteworthy Organizations Providing Palliative Care Resources and Support
The American Pain Society is a multidisciplinary organization of basic and clinical scientists, practicing clinicians, policy analysts, and others. The mission of the American Pain Society is to advance pain-related research, education, treatment and professional practice.
Center to Advance Palliative Care www.capc.orq Supported by the Robert Wood Johnson Foundation with direction and technical assistance provided by the Mount Sinai School of Medicine (NY), CAPC provides health care professionals with the tools and training necessary to start and sustain successful palliative care programs. Website offers a wealth of resources for patients, families, and health professionals including an excellent selection of tool kits that focus on pain control, decision making guides, communication about palliative care and more...
End of Life/Palliative Education Resource Center http://www.eperc.mcw.edu/ This site is intended to support individuals involved in the design, implementation, and/or evaluation of End-of-Life/Palliative education for physicians, nurses and other health care professionals. More specifically, the site has been designed for use by medical school course/clerkship directors, residency and continuing education program directors, medical faculty, community preceptors, or other professionals who are (or will be) involved in providing EOL instruction to health care professionals in training. Make sure you look at the FAST FACTS Worksheets on this site -- Fast Facts are peer reviewed, one-page outlines of key information on important end-of-life clinical topics for end-of-life educators and clinicians.
Hospice Foundation of America, www.hospicefoundation.org
Innovations in End-Of-Life Care www2.edc.orq/lastacts. This international, online journal features peerreviewed promising practices in end-of-life care, useful tools, selected bibliographies, and other resources.
Last Acts, http://www.lastacts.orq - Resources to improve care near the end of life. Last Acts is a campaign to improve end-of-life care by a coalition of professional and consumer organizations. We believe in palliative care, focused on managing pain and making life better for individuals and families facing death. Last Acts envisions a world in which dying people and their loved ones receive excellent care and are honored and supported by their community. This site is for professionals and volunteers working to improve care of the dying
The Leukemia and Lymphoma Society, www.leukemia-lympoma.org
National Hospice and Palliative Care Organization (NHPCO) www.nhpco.orq Largest nonprofit membership organization representing hospice and palliative care programs and professionals in the United States. The organization is committed to improving end of life care and expanding access to hospice care with the goal of profoundly enhancing quality of life for people dying in America and their loved ones. Policy updates, education and conference listings, technical assistance, and resources. Their Marketplace has several excellent publications of interest; including a booklet on Telehospice
National Institute for Trauma and Loss in Children, www.tlcinstitute.org
The National Child Traumatic Stress Network, www.nctsn.orq. The Courage To Rember: Childhood Traumatic Grief Curriculum Guide is available on this site
World Health Organization www.whocancerpain.wisc.edu Cancer Pain Release - free online publication of the World Health Organization global communications program to improve cancer pain control and palliative and supportive care. Cancer Pain Release is dedicated to keeping a worldwide and multidisciplinary audience in the health professions and government abreast of relevant information and developments in clinical medicine, education and policy. Excellent resource that includes WHO guidelines for pain management, palliative care for adults and children, use or opioids and much more.
